The Vitiligo International Patients Organisations Committee (VIPOC) has announced that the Vitiligo Patient Views (VPV) Survey is now live.
The primary goal of the VPV survey is to collect real insights about quality of life (QOL), psychological impact of vitiligo, diagnostic journey and access to care and treatments from those living with vitiligo and their caregivers. Survey findings will be used to develop a global whitepaper and peer-reviewed publication, generating the robust scientific evidence that policymakers, clinicians, and the wider scientific community need to drive meaningful change for people with vitiligo.
You are encouraged to participate in the survey if you are
- ≥ 18 years with vitiligo
- 12–17 years with vitiligo (with both individual and parental consent)
- A legal guardian of children under 18 with vitiligo
The study is an international, cross-sectional, study conducted via an online questionnaire which the participant completes independently. It contains around 40 questions and will take between 20 and 30 minutes.
For more information, visit VIPOC.org.
About VIPOC
VIPOC is an official non-governmental organisation (NGO) established in 2018, and is based in Paris, France. It is a global alliance of patient organisations with representatives from over 12 nationalities on its Board, from North America, Latin America, Europe, Africa and Asia. The organisation works to bring together patient organisations from around the world and amplify the voices of people with vitiligo, to support research into new treatments and therapies for the condition, and to raise awareness of the condition on a global level. Its goals include: having vitiligo recognised as a non-communicable disease (not cosmetic), for vitiligo to be included under insurance reimbursements, to promote clinical trials in vitiligo and to facilitate the founding of new patient organisations.
