CLINUVEL Newsletter – February 2017

16 February 2017

I wish all stakeholders of the CLINUVEL Group a healthy, mindful and successful 2017. After a Christmas break CLINUVEL started 2017 with fervour and ‘en bon esprit’. We look forward to an exciting year. During a meeting on 4 February in London international expert physicians, senior and paediatric patients, family carers and advocates gathered to further characterise the disease erythropoietic protoporphyria (EPP). Our teams witnessed how traumatised and affected EPP patients are, and we were abruptly reminded of the privilege to supply treatment to EPP patients who had not received a diagnosis for, in some instances, more than four decades of their lives.

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