Social & Media

Array
(
    [0] => https:
    [1] => 
    [2] => www.clinuvel.com
    [3] => social-media
    [4] => webcasts-videos
)
Home / Social & Media / Webcasts/Videos

Webcasts/Videos

In June 2015, US broadcaster NBC reported on the impact of rare light disorders, including erythropoietic protoporphyria, on patients and their families.

 

Coverage of erythropoietic protoporphyria on Good Morning America, July 2015.

 

Taking on Vitiligo, a depigmentation disorder of the skin. In 2010, CLINUVEL ventured into an area of dermatology where no other pharmaceutical company has yet succeeded, trialing a new drug, SCENESSE®(afamelanotide) in vitiligo as a combination therapy with narrowband ultraviolet B light therapy. Winner of four Emmy® Awards, anchor and producer, entertainment reporter at WJBK […]

 

Taking on Vitiligo, a depigmentation disorder of the skin. In 2010, CLINUVEL ventured into an area of dermatology where no other pharmaceutical company has yet succeeded, trialing a new drug, SCENESSE® (afamelanotide) in vitiligo as a combination therapy with narrowband ultraviolet B light therapy. Winner of four Emmy® Awards, anchor and producer, entertainment reporter at […]

 

Taking on Vitiligo, a depigmentation disorder of the skin. In 2010, CLINUVEL ventured into an area of dermatology where no other pharmaceutical company has yet succeeded, trialing a new drug, SCENESSE® (afamelanotide) in vitiligo as a combination therapy with narrowband ultraviolet B light therapy. Winner of four Emmy® Awards, anchor and producer, entertainment reporter at […]

 

Taking on Vitiligo, a depigmentation disorder of the skin. In 2010, CLINUVEL ventured into an area of dermatology where no other pharmaceutical company has yet succeeded, trialing a new drug, SCENESSE®(afamelanotide) in vitiligo as a combination therapy with narrowband ultraviolet B light therapy. Winner of four Emmy® Awards, anchor and producer, entertainment reporter at WJBK Fox […]

 

Erythropoietic protoporphyria (EPP) is a rare disease causing absolute intolerance of skin to light. In about 5% of EPP cases, patients also experience liver failure, requiring a life saving liver transplant. Florence, an immunology PhD, career scientist and EPP patient, underwent a liver transplant in 1989 following a liver failure due to her EPP. In […]

 

Vitiligo is a skin disorder which causes the loss of pigment – melanin – in the skin. Though it affects around 45 million people worldwide, common understanding of vitiligo has been clouded by misconceptions, leading to the stigmatization of those affected by the disease. Modern medical understanding easily corrects much of this misunderstanding. In presenting […]

 

On 31 January 2012 Swiss TV channel Telezueri aired a report on erythropoietic protoporphyria (EPP), a rare genetic disorder which causes absolute intolerance of skin to sunlight, and CLINUVEL’s novel drug SCENESSE® (afamelanotide), which has been trialed as a photoprotective in EPP. CLINUVEL has subtitled the ‘Check up’ program and re-released for the broader EPP […]

 

Following CLINUVEL’s landmark filing of a marketing authorisation application for the drug SCENESSE® (afamelanotide) with the European Medicines Agency, CEO Dr Philippe Wolgen discusses the challenges to date and what may lie ahead for CLINUVEL.

 

Mikey’s quality of life, like all patients with Erythropoietic Protoporphyria (EPP), is severely affected. Severe pain forces him into living a nocturnal life or enduring outdoor activities in great discomfort or pain. Isolation and unrelenting pain from sun exposure greatly impacts the quality of life of EPP patients. With no effective treatment currently available to […]

 

There are many remedies available to help provide relief from the symptoms of sunburn. Treatment of sunburn can include: applying a damp towel to sunburnt areas, cool baths, medication, topical ointments and keeping hydrated. If you have any of the following symptoms you may have acute sunburn: Severe burns Deep reddening Extensive blistering Strong pain […]

 

Vitiligo is a common pigmentary disorder in which the pigment producing cells of the skin (melanocytes) are absent or do not function. As a result, lighter patches of skin appear on various parts of the body due to the lack of melanin (pigment). The exact cause of vitiligo is still not well understood and many […]

 

Part one – Absolute intolerance to light This is the third webcast in a series featuring Mikey, an Australian man with Erythropoietic Protoporphyria (EPP). You can view the earlier webcasts, Part one – Absolute intolerance to light and Part two – “People don’t believe what they can’t see” There is no escape from light when […]

 

Have you ever wondered why you have been sunburnt on a cloudy day? The total dose of UV radiation reaching the earth’s surface and hence, the potential damage to human skin and tissues, varies, depending on many factors. The sun’s elevation in the sky depends on the time of the day and year. The shorter […]