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过度曝光

With thanks to Andrea Minoglio we are able to share a copy of his intimate EPP documentary Overexposed with Mandarin subtitles.

What’s your life like when your skin, like an ultra-sensitive film, gets burned as soon as you expose it to the slightest amount of light? Using a series of interviews and stories, included that of the filmmaker himself, *Overexposed* tries to tell and show the strange “love and hate” relationship that people suffering from Erythropoietic Protoporphyria have with sunlight.

感谢Andrea Minoglio,使我们得以与您分享他的《过度曝光》,一部浅入深出,细细讲述光与红细胞生成性原卟啉病的纪录片。

设想,当您的皮肤如超光感胶片一般,每每暴露于光照之下,哪怕只是一点点,就会被立即灼伤,您的生活会是怎样?《过度曝光》,透过一个个包括纪录片制作人的亲身经历在内的真实故事,娓娓讲述红细胞生成性原卟啉病病友与阳光之间这份特别的“爱与恨”。