“The fear of what lay ahead” is our latest webcast exploring the impact of EPP upon individuals, their families and loved ones.
Wendy and Ralph are the proud parents of two daughters, who were both diagnosed with Erythropoietic Protoporphyria (EPP), although their first daughter suffered for almost three years before the correct diagnosis of EPP was arrived at.
In this short film they discuss the fear, confusion and distress they endured as a result of grappling with EPP’s severity, invisibility and often unknown and misunderstood nature, all the while unable to treat or protect their children.
Clinuvel would like to extend its thanks and appreciation to Ralph, Wendy, Angela and Lyndal for allowing us to share their story.
