Most people are not actually ‘allergic’ to the sun, but rather are suffering the first symptoms of seasonal or light-induced skin disorders, known medically as photodermatoses. Photodermatoses cause a person’s skin to react to even the briefest sunlight exposure by burning, swelling or developing a rash. Most distressingly, these diseases can have sudden onset where people, who may have never experienced them before, see symptoms following their first day in the spring sun. (more…)
As snow begins to fall around Clinuvel’s European office, the team in Australia is preparing for a long hot summer. The seasons are at the forefront of our minds at Clinuvel, since our lead drug SCENESSE® appears to have a dramatic impact on the ability of patients to expose themselves to sun. We try to test the drug under the most extreme conditions, meaning trials must be conducted in spring and summer. As the seasons change, we begin to see more requests and enquiries from the southern hemisphere, in particular from patients with erythropoietic protoporphyria (EPP), seeking access to the drug outside of formal trial programs. (more…)
A new study from the University of Manchester has uncovered some of the impacts that photosensitivity disorders have upon individual and family quality of life. While several research papers have illustrated the trend towards reduced psychological health in this group, this is the first to compare specific aspects of lifestyle in photosensitive and healthy individuals. (more…)
Today Clinuvel presents the first in a series of webcast videos featuring 44 year-old Mikey, an Australian man with the severe light intolerance disorder Erythropoietic Protoporphyria (EPP).
EPP is a rare, inherited, metabolic disorder characterised by extreme phototoxicity; toxic reactions to UV and visible light, particularly blue light. The symptoms of this photosensitivity may include those which are not visible to the naked eye, including itching, burning, prickling and most notably, intense pain. (more…)